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-Personal Stories-

At NeuraHope, we are dedicated to amplifying voices and spreading awareness about neural tube defects (NTDs).We remain committed to sharing the lived experiences of those affected, ensuring their stories are heard with empathy and without bias. Every journey matters, and by understanding, we strive to create a world where awareness leads to action, compassion, and change. Below, you’ll find a compilation of personal stories—because every voice deserves to be heard.

Youmna's Story

6/4/2025

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Youmna is our next amazing feature. Her family is based in Libya. Youmna was born on January 20th, 2020 with Spina Bifida. 

Her mother lovingly documents Youmna’s activities on her Instagram account: @youmna.salah2020

​Read a Q+A from her mother below.

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Can you tell us a little about Youmna and what she enjoys doing?
Youmna is a bright joyful little girl who absolutely loves music and dancing Her laughter lights up any room she’s in and she’s always curious about the world around her She also enjoys coloring and watching cartoons especially ones with animals
How do Youmna and your family navigate life with spina bifida?
Navigating spina bifida as a family has definitely come with its challenges but it has also taught us resilience patience and the true meaning of unconditional love We focus on creating an environment where Youmna feels empowered and supported whether it’s through physical therapy adaptive tools or just celebrating her victories big and small Her strength inspires us every day
What would you like the world to know about your daughter and spina bifida?
What we’d love for the world to know is that having a child with spina bifida doesn’t limit the love joy or potential in a family Youmna is capable vibrant and full of promise and we feel incredibly lucky to have her in our lives.
How are you helping raise awareness about spina bifida in your community?
In Libya there is little awareness or knowledge about spina bifida Youmna’s mother took the initiative to bring together children with spina bifida to mark World Spina Bifida Day and raise awareness about the condition over the past two years


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Youmna is capable vibrant and full of promise and we feel incredibly lucky to have her in our lives
Visit @youmna.salah2020 to support her page

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  • Home
    • About Us
    • Our Features
  • Amplification and Awareness
  • Current Projects
    • Seasonal Newsletter
    • NeuraTalk Podcast
  • Make A Donation
  • Research and Analysis
    • Treatment information
    • Recipes
  • Blogs
  • Impacts
    • Past Events
    • Sticker Design Contest
  • NTDs In Detail
    • Types of NTDs