 Pedro nasceu com mielomeningocele e hidrocefalia. A história de Pedro, de 5 anos, e de seu irmão gêmeo é compartilhada no Instagram da família: @gemeos.pedroearthur. Leia abaixo uma entrevista emocionante com a família.
Pedro was born with Myelomeningocele and hydrocephalus. Alongside his twin brother, 5-year-old Pedro's story is shared on the family's Instagram: @gemeos.pedroearthur. Read a heartwarming Q&A about the family below.
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 Akeema documents her workouts on her page, @sbworkoutwarrior, where she also includes videos of original workouts that are disability firendly. She brings inclusiveness and openness to the gym. Read her story in English and Spanish below.
Akeema documenta sus entrenamientos en su página, donde también incluye videos de entrenamientos originales adaptados a personas con discapacidad. Aporta inclusión y apertura al gimnasio. Lee su historia en inglés y español a continuación.  Jaqueline nasceu com uma condição chamada mielomeningocele de espinha bífida. Sua família compartilha sua história conosco abaixo. (@relatos_jack)
Jaqueline was born with a condition called spina bifida myelomeningocele. Her family shares their story with us below. (@relatos_jack) Leia uma história detalhada abaixo em português (primeiro) e inglês (segundo). Read a detailed story below in Portuguese (first) and English (second).  Anthony nasceu com uma condição chamada mielomeningocele de espinha bífida. Sua família compartilha sua história conosco abaixo. (@la.vie.de.anthony)
Anthony was born with a condition called spina bifida myelomeningocele. Her family shares their story with us below. (@la.vie.de.anthony) Leia uma história detalhada abaixo em português (primeiro) e inglês (segundo). Read a detailed story below in Portuguese (first) and English (second).  Emilia nació con una condición llamada espina bífida mielomeningocele. Su familia comparte su historia con nosotros a continuación. (@emiliamimielo)
Emilia was born with a condition called spina bifida myelomeningocele. Her family shares their story with us below. (@emiliamimielo) Lea una historia detallada a continuación en español (primero) y en inglés (segundo). Read a detailed story below in Spanish (first) and English (second).  Instagram: @mylifewithspinabifida Facebook: Mein Leben mit Spina Bifida Heike shares her journey with spina bifida and hydrocephalus, using her lived experience to raise awareness and build understanding around disability. Read her story below in German (first) and English (second) Heike erzählt von ihrem Leben mit Spina bifida und Hydrocephalus und nutzt ihre persönlichen Erfahrungen, um Bewusstsein zu schaffen und mehr Verständnis für das Leben mit einer Behinderung zu fördern.
Ihre Geschichte ist unten zuerst auf Deutsch und danach auf Englisch zu lesen.  Mariafé nació con una condición llamada espina bífida mielomeningocele. Su familia comparte su historia con nosotros a continuación. (@yazhsanchez )
Mariafé was born with a condition called spina bifida myelomeningocele. Her family shares their story with us below. (@yazhsanchez ) Lea una historia detallada a continuación en español (primero) y en inglés (segundo). Read a detailed story below in Spanish (first) and English (second).  Lernen Sie unser nächstes tolles Feature kennen: Rahel. Ihre Familie dokumentiert Rahels Reise liebevoll auf ihrem Instagram-Account: rahel_with_spinabifida
Schau es dir an und unterstütze Rahel! Meet our next amazing feature: Rahel. Her family lovingly documents Rahel’s journey on their Instagram account: rahel_with_spinabifida Check it out and support Rahel! Lesen Sie eine Geschichte auf Deutsch (zuerst) und Englisch (zweitens). Read her story in German (first) and English (second).  Youmna is our next amazing feature. Her family is based in Libya. Youmna was born on January 20th, 2020 with Spina Bifida.
Her mother lovingly documents Youmna’s activities on her Instagram account: @youmna.salah2020 Read a Q+A from her mother below.  Davi nasceu com uma condição chamada espinha bífida, mielomeningocele. Sua família compartilha sua história em sua conta do Instagram: @rei_davi_carvalho
Davi was born with a condition called myelomeningocele. His family shares his story on his Instagram account:@rei_davi_carvalho Leia abaixo uma história detalhada em português (primeiro) e inglês (segundo). Read a detailed story below in Portuguese (first) and English (second).  Leia-Grace is our next Spina Bifida warrior. Leia-Grace was born at 38 weeks and 2 days. The family is based in Scotland, UK. Leia-Grace had a repair operation immediately after birth, at 1 day old; she had a shunt placed at 4 days old. (Thankfully, no revisions)
Her mother lovingly documents Leia-Grace's activities on her Instagram account: @leiagrace_sbwarrior Read a Q+A from her mother below.  Kenisha nació con una condición llamada espina bífida mielomeningocele nivel L3 y sacro. Su familia comparte sus experiencias en su Instagram: @kenishatinocoflorez.
Kenisha was born with a condition called spina bifida myelomeningocele. Her family shares her story on her Instagram account:@kenishatinocoflorez. Lea una historia detallada a continuación en español (primero) y en inglés (segundo). Read a detailed story below in Spanish (first) and English (second).  Our next feature, Ivy’anna was born at 39 weeks. Ivy'anna was sent to Scottish Rite Hospital to have her surgery immediately after birth; she has Myelomeningocele and Clubfeet. She received her VP Shunt 5 days after being born and had to stay in the hospital for two weeks. Ivy’anna has had a total of 7 surgeries since birth. She has feeling everywhere but her feet and wears braces to support her walking. Nevertheless, she does pretty well getting around.
Her family documents Ivy'anna's excursions on their Instagram account: @ivy_on_wheels. Read a detailed Q+A from the family below:  Ámbar nació con espina bífida e hidrocefalia. Su mamá comparte aspectos de su vida en su Instagram, libros y canal de YouTube: “Ámbar más allá del ballet”. Apoye la cuenta central de Ámbar: @kaimasdos.
Ámbar was born with spina bifida and hydrocephalus. Her mother shares aspects of her life on her Instagram, books, and YouTube channel: “Ámbar más allá del ballet”. Support Ámbar’s central account: @kaimasdos. Lea una historia detallada a continuación en español (primero) y en inglés (segundo). Read a detailed story below in Spanish (first) and English (second).  Evanna was born with hydrocephalus and spina bifida. Her family lovingly captures Evanna’s journey on her Facebook Community Group at fb.com/EvannasJoy .
Read a detailed Q+A from the family below:  Our second feature is the one and only Amir Marvelous Jackson. Amir was born with spina bifida and hydrocephalus, and from the words of his family: “he is the true meaning of a fighter!”
The 7-year-old loves to hang out like any other kid. He plays baseball, bowls, goes fishing, swimming, etc; he also has the coolest Halloween costumes. Amir is a bundle of joy; his family lovingly documents Amir’s excursions on their Instagram account, The Journey of Amir Jackson.  Our first feature Carter, was born with spina bifida myelomeningocele. Carter was born at thirty-three weeks and four days old as the youngest of three children. At twenty-four weeks in utero, he had a successful surgery to decrease his enlarged ventricles and reverse his Chiari 2 Malformation.
Carter grows, learns, and plays like any young child. His family lovingly captures and shares his experiences on their Instagram account: Carter’s Spina Bifida Journey. |
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September 2025
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