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-Personal Stories-

At NeuraHope, we are dedicated to amplifying voices and spreading awareness about neural tube defects (NTDs).We remain committed to sharing the lived experiences of those affected, ensuring their stories are heard with empathy and without bias. Every journey matters, and by understanding, we strive to create a world where awareness leads to action, compassion, and change. Below, you’ll find a compilation of personal stories—because every voice deserves to be heard.

HEIKES GESCHICHTE

8/2/2025

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Instagram: @mylifewithspinabifida
Facebook: Mein Leben mit Spina Bifida

Heike shares her journey with spina bifida and hydrocephalus, using her lived experience to raise awareness and build understanding around disability.
Read her story below in German (first) and English (second)
Heike erzählt von ihrem Leben mit Spina bifida und Hydrocephalus und nutzt ihre persönlichen Erfahrungen, um Bewusstsein zu schaffen und mehr Verständnis für das Leben mit einer Behinderung zu fördern.
Ihre Geschichte ist unten zuerst auf Deutsch und danach auf Englisch zu lesen.

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  • Home
    • About Us
    • Our Features
  • Amplification and Awareness
  • Current Projects
    • Seasonal Newsletter
    • NeuraTalk Podcast
  • Make A Donation
  • Research and Analysis
    • Treatment information
    • Recipes
  • Blogs
  • Impacts
    • Past Events
    • Sticker Design Contest
  • NTDs In Detail
    • Types of NTDs