 Leia-Grace is our next Spina Bifida warrior. Leia-Grace was born at 38 weeks and 2 days. The family is based in Scotland, UK. Leia-Grace had a repair operation immediately after birth, at 1 day old; she had a shunt placed at 4 days old. (Thankfully, no revisions)
Her mother lovingly documents Leia-Grace's activities on her Instagram account: @leiagrace_sbwarrior Read a Q+A from her mother below.
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 Kenisha nació con una condición llamada espina bífida mielomeningocele nivel L3 y sacro. Su familia comparte sus experiencias en su Instagram: @kenishatinocoflorez.
Kenisha was born with a condition called spina bifida myelomeningocele. Her family shares her story on her Instagram account:@kenishatinocoflorez. Lea una historia detallada a continuación en español (primero) y en inglés (segundo). Read a detailed story below in Spanish (first) and English (second).  Our next feature, Ivy’anna was born at 39 weeks. Ivy'anna was sent to Scottish Rite Hospital to have her surgery immediately after birth; she has Myelomeningocele and Clubfeet. She received her VP Shunt 5 days after being born and had to stay in the hospital for two weeks. Ivy’anna has had a total of 7 surgeries since birth. She has feeling everywhere but her feet and wears braces to support her walking. Nevertheless, she does pretty well getting around.
Her family documents Ivy'anna's excursions on their Instagram account: @ivy_on_wheels. Read a detailed Q+A from the family below: |
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September 2025
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