NeuraHope
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-Personal Stories-

At NeuraHope, we are dedicated to amplifying voices and spreading awareness about neural tube defects (NTDs).We remain committed to sharing the lived experiences of those affected, ensuring their stories are heard with empathy and without bias. Every journey matters, and by understanding, we strive to create a world where awareness leads to action, compassion, and change. Below, you’ll find a compilation of personal stories—because every voice deserves to be heard.

La historia de Ámbar (Ámbar’s Story)

3/15/2025

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Ámbar nació con espina bífida e hidrocefalia. Su mamá comparte aspectos de su vida en su Instagram, libros y canal de YouTube: “Ámbar más allá del ballet”. Apoye la cuenta central de Ámbar: @kaimasdos.

Ámbar was born with spina bifida and hydrocephalus. Her mother shares aspects of her life on her Instagram, books, and YouTube channel: “Ámbar más allá del ballet”. Support Ámbar’s central account: @kaimasdos.

Lea una historia detallada a continuación en español (primero) y en inglés (segundo).
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Read a detailed story below in Spanish (first) and English (second).

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Evanna's Story

3/9/2025

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Evanna was born with hydrocephalus and spina bifida. Her family lovingly captures Evanna’s journey on her Facebook Community Group at  fb.com/EvannasJoy .

Read a detailed Q+A from the family below:

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  • Home
    • About Us
    • Our Features
  • Amplification and Awareness
  • Current Projects
    • Seasonal Newsletter
    • NeuraTalk Podcast
  • Make A Donation
  • Research and Analysis
    • Treatment information
    • Recipes
  • Blogs
  • Impacts
    • Past Events
    • Sticker Design Contest
  • NTDs In Detail
    • Types of NTDs