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-Personal Stories-

At NeuraHope, we are dedicated to amplifying voices and spreading awareness about neural tube defects (NTDs).We remain committed to sharing the lived experiences of those affected, ensuring their stories are heard with empathy and without bias. Every journey matters, and by understanding, we strive to create a world where awareness leads to action, compassion, and change. Below, you’ll find a compilation of personal stories—because every voice deserves to be heard.

Amir’s Story

2/9/2025

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Our second feature is the one and only Amir Marvelous Jackson. Amir was born with spina bifida and hydrocephalus, and from the words of his family: “he is the true meaning of a fighter!”
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The 7-year-old loves to hang out like any other kid. He plays baseball, bowls, goes fishing, swimming, etc; he also has the coolest Halloween costumes. Amir is a bundle of joy; his family lovingly documents Amir’s excursions on their Instagram account,  The Journey of Amir Jackson.


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Carter's Story

2/8/2025

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Our first feature Carter, was born with spina bifida myelomeningocele. Carter was born at thirty-three weeks and four days old as the youngest of three children. At twenty-four weeks in utero, he had a successful surgery to decrease his enlarged ventricles and reverse his Chiari 2 Malformation.  
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Carter grows, learns, and plays like any young child. His family lovingly captures and shares his experiences on their Instagram account: Carter’s Spina Bifida Journey.
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  • Home
    • About Us
    • Our Features
  • Amplification and Awareness
  • Current Projects
    • Seasonal Newsletter
    • NeuraTalk Podcast
  • Make A Donation
  • Research and Analysis
    • Treatment information
    • Recipes
  • Blogs
  • Impacts
    • Past Events
    • Sticker Design Contest
  • NTDs In Detail
    • Types of NTDs